How the org can help patients/families with care, information and/or support.
Mission: The American Cancer Society’s mission is to save lives, celebrate lives, and lead the fight for a world without cancer
The American Cancer Society offers free, comprehensive patient services and programs designed to help our patients with their information, day-to-day living, and emotional support needs. Contact your American Cancer Society at 800-227-2345 to find programs available in your area.
Mission: The Institute is able to help Americans take action against cancer risk through your passion and generosity. We fund cutting-edge research and give people practical tools and information to help them prevent and survive cancer.
The American Institute for Cancer Research leads the charge in the fight for cancer prevention. Website offers valuable prevention tips and tools for the patient and their family on the following topics; diet and nutrition, lifestyle, exercise and wellness. For general questions call 1-800-843-8114.
Mission: NCI leads, conducts, and supports cancer research across the nation to advance scientific knowledge and help all people live longer, healthier lives.
The National Cancer Institute offers consumer friendly health information on the following cancer topics; cause, diagnosis, prevention, treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. Information is available via the website, live chat, or call 1-800-4-CANCER.
Mission: NCCN is dedicated to improving and facilitating quality, effective, efficient, and accessible cancer care so patients can live better lives.
The website offers consumer friendly information titled The NCCN Guidelines for Patients® and NCCN Quick Guide™ sheets. The guidelines provide support with disease specific information, questions to ask you doctors and treatment options for your disease.
Mission: NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
NORD is the primary source of support and information for patients and families affected by rare diseases. The site provides patients and caregivers with free webinars, fact sheets, info graphics and other helpful materials.
Clinical Trial Search
About: ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world. Before participating in a study, talk to your health care provider and learn about the risks and potential benefits.
The site enables cancer patients and families to search for studies they may be able to participate in or learn about new interventions/treatments that are being considered.
The site offers information about Affordable Health Insurance Coverage. To speak to representative call: 1-800-318-2596.
Mission: To fulfill President Lincoln's promise “To care for him who shall have borne the battle, and for his widow, and his orphan” by serving and honoring the men and women who are America’s Veterans.
The organization can help assist veterans with a variety of supportive services including; Health Care, Housing Assistance, Life Insurance, Disability, Education and Training, Burials and Memorials, Pension, and accessing Records (medical, military and benefits). To speak to a representative call 844-698-2311.
About: The Office of Disease Prevention and Health Promotion (ODPHP) plays a vital role in keeping the nation healthy. We accomplish this by setting national public health objectives and supporting programs, services, and education activities that improve the health of all Americans.
The website offers resources, trainings and webinars for the following topics; food and nutrition, physical activity, health literacy, health care quality, and Healthy People 2030. Complete the MyHealthfinder form online to see what tests and vaccines you and your family need to receive to stay healthy.
About: Medicare.gov is the Official U.S Government Website for Medicare.
The website provides resources for the following topics; Applying for Medicare, 2020 Medicare Costs, Find Local Help, Medicare Card Issues and Getting Setup with Medicare. To speak to a representative call 1-800-MEDICARE.
About: Social Security Disability is a U.S. government program that provides financial assistance to individuals who are unable to work due to a long-term disability. There are two different programs: Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI).
The website provides support on navigating the application process including; how to apply for disability benefits and how to qualify for disability benefits. For additional questions if you qualify complete the free disability evaluation form to be contacted by an attorney who will help evaluate your claim.
Hospice and Palliative Care
About: Getpalliativecare.org is a website providing clear, comprehensive palliative care information for people living with a serious illness. The site is provided by the Center to Advance Palliative Care (CAPC).
About: As the leading organization representing hospice and palliative care providers, NHPCO works to expand access to a proven person-centered model for healthcare—one that provides patients and their loved ones with comfort, peace, and dignity during life’s most intimate and vulnerable experiences.
The sites provides resources to help people make decisions about end-of-life care and services before a crisis. Information covers the following topics; Hospice care, Palliative Care, Advance Care Planning, Caregiving, Greif and Loss and CaringInfo Resources.
Mission: To promote, protect and advance the highest quality health care at home.
The website provides consumer information and guidance for the following topics; Home Care and Hospice Agency Locator, Home Care and Hospice Basics, and What are the Standard Billing and Payment Practices.
About: PalliativeDoctors.org is the patient site of the American Academy of Hospice and Palliative Medicine (AAHPM).
The website provides supplemental information for patients and families to get started with planning for the following topics; Palliative Care, Hospice Care, The Team Approach, Getting Started with Treatment and Patient Stories.
Insurance and Financial Issues
Mission: To reduce financial barriers to care for underinsured patients with chronic or life-altering diseases.
The nonprofit offers assistance with the following topics; prescription copays, health insurance premiums, deductibles and coinsurance, pediatric treatment costs and travel costs.
Mission: NeedyMeds educates and empowers those seeking affordable healthcare.
NeedyMeds is a 501(c)(3) national non-profit that connects people to programs that will help them afford their medications and other healthcare costs. For immediate assistance call the Helpline: 800-503-6897.
Mission: To safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.
PAF serves as an active liaison between patients and their insurer, employer and/or creditors to resolve insurance, job retention, and/or debt crisis matters relative to their diagnosis through professional case managers and a national network of health care attorneys. Call to speak with a live person at (800) 532-5274.
Mission: To help underinsured people with life-threatening, chronic and rare diseases get the medications and treatments they need by assisting with their out-of-pocket costs and advocating for improved access and affordability.
The sites offers assistance on the following topics: applying for assistance, managing a grant, filing a claim, locating disease funds and additional supportive resources.
About: Information for people with cancer and their families and caregivers, from the American Society of Clinical Oncology (ASCO), the voice of the world’s cancer physicians and oncology professionals.
The website covers a variety of topics including; individual guides for different types of cancer, coping with cancer, navigating your cancer care, information about clinical trials, survivorship and blogs. The website has the option to be translated into Spanish.
Mission: Cancer and Careers empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events.
The website includes free publications and a series of support groups and educational seminars for employees with cancer.
Mission: We have a Mission Question, not a Mission Statement, because we believe that we can only achieve the best solutions through asking the right questions. We ask survivors and caregivers what they need, we ask the system how it can be more person-centered, we ask innovators how we can bring impossible ideas to life.
The site offers supportive programs ranging from navigating diagnosis, speaking to children, financial resources, fertility, nutrition, survivorship, wellness, young adult support and more.
Mission: To present high-quality, relevant health and wellness information that is trusted, easy to understand, and free of advertising, in both English and Spanish. Anywhere, anytime, on any device—for free
Provides a wealth of information from the National Library of Medicine written at the patient level. Great tool to connect to additional disease specific information and additional websites.
Mission: The goal of Patient Resource LLC is to empower people who are suffering with life-altering diseases by giving them the most comprehensive and up-to-date guides to treatment and facilities for their disease free of charge.
The guides are free and cover a wide variety of topics related to cancer treatment.
About: PubMed is a free resource supporting the search and retrieval of biomedical and life sciences literature with the aim of improving health–both globally and personally.
Provides access to the clinical studies on MEDLINE and other related databases. In addition to brief abstracts from technical journals, PubMed offers frequently asked questions, news, and clinical alerts. It’s a user friendly searchable sites for free articles, studies and external websites.
About: We conduct and support research and provide information about complementary health products and practices.
Covers the following health topics: health topics A-Z, be an informed consumer, herbs at a glance, and know the science.
Mission: To advocate for quality cancer care for all people touched by cancer. Founded by and for cancer survivors, NCCS created the widely accepted definition of survivorship and defines someone as a cancer survivor from the time of diagnosis and for the balance of life.
The resource section includes the following topics to help with your journey: Cancer Convos - Podcast, Cancer Survival Toolkit, Cancer Survival Checklist, Advocating for Yourself, Employment Rights, Remaining Hopeful and the list continues.
The Cleveland Clinic 4th Angel Mentoring Program is an innovative, interactive approach to cancer support in which patients and caregivers are matched with trained volunteer mentors with similar age and cancer experiences. The program is a national, free service that emphasizes one-on-one contact to best empower caregivers and patients with knowledge, awareness, hope and a helping hand.
About: Founded in 1944, CancerCare is the leading national organization providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer.
Services include counseling and support groups over the phone, online and in-person, educational workshops, publications, webinars, financial and co-payment assistance and community programs.
About: CancerConnect combines original content and news with expert doctor commentary from many leading health providers with editor curated content from the web to ensure our users have access to the most relevant and through educational content available to support their decision making.
CancerConnect is comprised of communities of individuals with similar interests in the area of cancer. Disease-specific groups as well as groups for caregivers, health and wellness, and nutrition all exist to provide patients with support during their cancer journey.
Mission: Caring.com helps those caring for seniors make better decisions, while saving time and money We equip family caregivers to make better decisions, save time and money, and feel less alone and less stressed as they face the many challenges of care giving.
Mission: As the largest professionally led nonprofit network of cancer support worldwide, the Cancer Support Community is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.
The organization offers a network of personalized services and education for all people affected by cancer. The site includes educational material by disease and treatment, online support groups and living with cancer information. To speak to a representative call 888-793-9355.
About: We’re a free, advertising-free platform with simple tools for patients and family caregivers to share health updates, and for their communities to offer support and encouragement.
The website is user friendly, create a profile to connect your loved ones with your health updates.
Mission: Imerman Angels’ mission is to provide comfort and understanding for all cancer fighters, survivors, previvors and caregivers through a personalized, one-on-one connection with someone who has been there.
The websites offers personalized one-on-one cancer support, a mentorship program and online resources.
About: Provides a free caregiving and volunteer service that allows for the creation of private web-based communities to organize help for people in need.
The hallmark of our platform is an intuitive group calendar where members can schedule and sign up for tasks that provide respite for the family including meals, rides to medical appointments and visits.
Mission: To ensure that every child whose parent is diagnosed with cancer is given the early tools and emotional support to cope.
Resources include the following; CLIMB Program, books, videos, workshops and activities for at home with your children. The tools will help guide you with difficult conversations.
Travel and Housing Services
Please note to utilize the services listed below, each organization has an application process and criteria patients must meet beforehand. Connect with your local Hospital to see if an Oncology Social Worker is available to help navigate the application process with you.
Mission: To promote, support, and represent public benefit flying through communication and cooperation among organizations facilitating flights for health, compassion, and community service.
Get connected to the services by filling out a referral form or emailing [email protected]
Mission: Corporate Angel Network is the only charitable organization whose sole mission is to fly cancer patients (both children and adults) to treatment at no cost to them on empty seats - on both private and corporate planes - with patients who need the rides. This not only improves the patients' chances of survival, but, it also reduces their emotional stress, physical discomfort, and financial burden.
Get connected to the services by submitting an online form or via email: [email protected] or phone: (914) 328-131
Mission: Patient AirLift Services is a 501(c)(3) nonprofit that arranges free air transportation for individuals requiring medical diagnosis, treatment or follow-up who cannot afford or are unable to fly commercially.
Get connected to the services by submitting an online form or via email: [email protected] or phone: 888-818-1231
Mission: To support homes that help and heal to be more effective in their service to patients and families.
The website allows you to search for available lodging near your treatment facility with affordable prices.
Mission: Removing the barrier to medical care with transportation on the ground and in the air.
For question or additional information click the link: https://www.mercymedical.org/request-assistance
Disease Specific Websites
The American Brain Tumor Association (ABTA) provides critical funding to researchers working towards breakthroughs in brain tumor diagnosis, treatment and care, with the ultimate goal of finding a cure. The ABTA is also the recognized resource for comprehensive information and compassionate support for the brain tumor patients, families and caregivers who are living with the disease.
The American Liver Foundation's mission is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease.
The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through Education, Advocacy and Research.
The mission of the foundation is to increase education and awareness of amyloidosis within the community leading to earlier diagnosis and improved treatment.
Blood & Marrow Transplant Information Network (BMT InfoNet) is dedicated to providing transplant patients, survivors and their loved ones with emotional support and high quality, easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants.
The site offers the latest information for the entire brain tumor community, from newly diagnosed patients, to survivors, families and healthcare professionals.
A nonprofit that offers opportunities to access free patient resources, like chemotherapy side effects, and get involved in advocacy, awareness and research for colorectal cancer.
The Foundation for Women's Cancer established to promote public awareness about the prevention, early detection and treatment of gynecologic cancer.
The Kidney Cancer Association (KCA) is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. We fund, promote, and collaborate with the National Cancer Institute (NCI), American Society for Clinical Oncology (ASCO), American Urological Association (AUA), and other institutions on research projects. We educate families and physicians, and serve as an advocate on behalf of patients at the state and federal levels.
Our mission is to conquer leukemia, lymphoma and myelodysplastic syndromes by funding research into their causes and cures, and to enrich the quality of life of those touched by these diseases.
The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. LLS's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.
Living Beyond Breast Cancer is a national nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life. Programs and services include lbbc.org, the Survivors' Helpline at (888) 753-LBBC (5222), conferences, teleconferences, community meetings, newsletters, publications and recordings.
Lung Cancer Alliance is the only national non-profit organization devoted solely to support and advocacy for all those living with or at risk for lung cancer.
The Caring Ambassadors Program mission is to help improve the lives of those affected by lung cancer through advocacy, information, and support.
The Lymphoma Research Foundation (LRF) is the nation’s largest non-profit organization devoted exclusively to funding innovative lymphoma research and providing people with lymphoma and healthcare professionals with up-to-date information about this type of cancer. LRF’s mission is to eradicate lymphoma and serve those touched by this disease.
The Melanoma International Foundation (MIF) provides personalized navigation to optimal treatment including clinical trials. Melanoma International’s HonCode-designated website empowers patients with scientifically backed information. Webinars are regularly presented by MIF with top researchers leading the discussion on all aspects of melanoma, including the latest treatments and the status of important clinical trials. MelanomaForum.org provides truth and substance as well as much-needed emotional support in a moderated on-line forum attracting 2000 members from 70 countries. Find out more at
The MMRF relentlessly pursues innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure.
Malecare works worldwide to improve the lives of people diagnosed with cancer, their families and communities by making health services safe, available, understandable and sustainable.
The mission of the National Bone Marrow Transplant Link is to help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services.
National Brain Tumor Society (NBTS) is a leader in the brain tumor community, bringing together the best of research and patient services to be a comprehensive resource for patients, families, caregivers, researchers, and medical professionals.
Maintain an on-going support system for women, family members and friends facing issues related to cervical cancer, HPV and other HPV cancers.
The National Marrow Donor Program® (NMDP) and our Be The Match Foundation® are nonprofit organizations dedicated to creating an opportunity for all patients to receive the bone marrow or umbilical cord blood transplant they need, when they need it.
The mission of the NOCC is to raise awareness and promote education about ovarian cancer. The Coalition is committed to improving the survival rate and quality of life for women with ovarian cancer.
PCF is the leading philanthropic organization funding and accelerating prostate cancer research globally.
The Sarcoma Alliance strives to improve the lives of people affected by sarcoma through accurate diagnosis, improved access to care, guidance, education and support.
The Skin Cancer Foundation has set the standard for educating the public and the medical profession about skin cancer, its prevention by means of sun protection, the need for early detection, and prompt, effective treatment. It is the only international organization devoted solely to combating the world’s most common cancer, now occurring at epidemic levels.
SPOHNC homepage. Support groups and information for those with head and neck cancers.
Official site for Race for the Cure. Everything you wanted to know about breast cancer.
The Thyroid, Head and Neck Cancer (THANC) Foundation was incorporated in April 2003 and has quickly grown to become the largest private funder of research in the country for these areas of cancer. In addition to research, THANC sponsors continuing professional medical education, community awareness and education, as well as patient outreach and support programs. Under the medical direction of Dr. Mark Urken, THANC is housed within the Institute for Head and Neck and Thyroid Cancer at the Phillips Ambulatory Care Center at Beth Israel Medical Center.
The nation’s largest private supporter of pancreatic cancer research, The Lustgarten Foundation provides patients and caregivers with free information, including a comprehensive handbook, Expert information series, and a Web site linking to an array of resources
The Ovarian Cancer National Alliance works to advance the interests of women with ovarian cancer by advocating at a national level for increases in research funding for the development of an early detection test, improved health care practices, and life-saving treatment protocols.
The United Ostomy Associations of America, Inc. (UOAA) is a national network for bowel and urinary diversion support groups in the United States. Its goal is to provide a nonprofit association that will serve to unify and strengthen its member support groups, which are organized for the benefit of people who have, or will have intestinal or urinary diversions and their caregivers.
Us TOO International Prostate Cancer Education & Support Network is a grassroots, registered 501(c)(3) non-profit prostate cancer education and support network of 325 support group chapters worldwide, providing men and their families with free information, materials and peer-to-peer support so they can make informed choices on detection, treatment options and coping with ongoing survivorship. The organization was founded in 1990 by five men who had been treated for prostate cancer.
By promoting greater awareness of the need for early detection and leveraging public resources for life-saving research and new treatments for those with advanced disease, we will win this fight. Our ultimate goal is to create a life-giving legacy for our sons and grandsons: the first generation of men who are free from prostate cancer – "Generation ZERO." Join us in creating this new generation, where prostate cancer becomes an obsolete health condition, much like polio. This new day is coming sooner than you may think.
All-Encompassing Support Programs around many different concerns patient and caregivers experience throughout treatment.
About: Fertile Action helps women touched by cancer become mothers through education, advocacy and financial aid for fertility preservation, sperm donation, egg donation, surrogacy and long-term storage of sperm, oocytes, and embryos.
About: Fertile Hope is a national LIVESTRONG initiative dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility.
About: ASRM is interested in all aspects of your reproductive life cycle.
We provide information on infertility, menopause, contraception, reproductive surgery, endometriosis, and other reproductive disorders. The website offers tools on
Mission: To give patients, parents, and physicians the information they need to have a better, more comprehensive dialog about fertility preservation, and to provide patients with information about their long-term health and well-being.
The website offers helpful information and resources on fertility, packets can be available in additional languages.
Statement: The Consortium represents a nationwide, interdisciplinary, and interprofessional network of medical specialists, scientists, and scholars who are exploring the relationships between health, disease, survivorship and fertility preservation in young cancer patients.
The website provides educational material about available treatment options and resources for young adults.
About: Find consumer-friendly information about the effects of genetic variation on human health.
About: The goal of Genes in Life is to answer your questions about health and genetics. If we cannot answer them, we will show you where to go to get the answers you need from other places.
Mission: Empowering ON DPG members as oncology nutrition leaders and experts through advocacy, education and research. Vision: Optimizing the health of persons with cancer and cancer survivors and contributing to cancer prevention efforts through food and nutrition.
The website contains information from what to eat when you don't feel well, to tips for healthy cancer-fighting nutrition.
Mission: First Descents provides life-changing outdoor adventures for young adults (ages 18 - 39) impacted by cancer and other serious health conditions.
Mission: Elephants and Tea is a media company with the mission to help adolescent and young adult (AYA) patients, survivors and caregivers know they are not alone in their fight with cancer The Elephant in the room is cancer. Tea is the relief conversation provides. Be Heard. Join the Herd. We are the only magazine written for and by the AYA cancer community telling their story in their own words.
Mission: Stupid Cancer's mission is to empower young adults affected by cancer by ending isolation and building community.
Programs include; CANCERCON, financial resources, meetups, webinars, cancer stories and additional supportive resources.
Mission: Lacuna Loft is a 501(c)3 nonprofit that encourages, empowers, and connects young adult cancer patients, survivors, and caregivers around the world, 24/7. Lacuna Loft provides online wellness support programs and resources, lifestyle encouragement, and a peer support community that young adults need to overcome their challenging health and life circumstances, and thrive.
Online topics range from blogs, book clubs, cooking, journaling, game night, hangouts, wellness and more.
Mission: The Samfund provides support for young adult cancer survivors in the United States as they recover from the financial impact of cancer treatment.
Through direct financial assistance and free online support and education, The Samfund helps young adults move forward towards their personal, professional, and academic goals.
Mission: mission is to empower young adults and caregivers affected by cancer to reclaim the lives that cancer took through "finding direction through connection." The primary way we fulfill our mission is by taking groups of young adult cancer survivors and caregivers on free backpacking and canoeing treks in beautiful wilderness.
The website also offers information on support after cancer diagnosis and treatment, cancer prevention and healthy lifestyle.
Mission: We change lives by creating a community of support for young adults, and their loved ones, impacted by cancer.
Programs include cancer and exercise, financial and scholarship support, meet ups and additional community resources.